Thursday, September 18, 2008

His Baby Blues

This week I started noticing that one of Grayson's eyes was starting to change color. Sigh. I was hoping he'd keep his blues like me, but it was looking like he was gonna get brown like his daddy. But the odd thing was, only 1 eye was turning. The other eye was staying blue as ever. As I kept examining his eyes, I started noticing that the pupil in the darker eye was much larger than the lighter eye. Huh. Didn't think much of it, but then when Amber (who watches the little booger on Tuesdays and Wednesdays) mentioned it to me as well, I thought it was better safe than sorry and that I should call the doc. So I did.

This morning I took him in to the pediatrician who checked things out, and then referred me to the pediatric opthamologist. I wasn't really freaked out by this at all yet, until they told me they wanted to get me in today. Not cool. Something must be really wrong if he has to be seen today. Luckily I only had to wait like 90 minutes to get in with the specialist. The Husband joined me at the 2nd appt since I was freaked.

The opt. doc did a bunch of shining lights in his eyes, then dilated them with some drops to get a better lock. She thinks he has Horner's Syndrome - which is characterized by a droopy eyelid (which he's had since birth), a lighter eye color in one eye (which seems to be occuring) and is sometimes caused by a neck trauma (which he had due to forceps during birth).

The good news is, there are no other medical side effects of this syndrome. His vision won't be affected, etc., It's purely a physical appearance thing, and as he gets older, the pupil difference won't be noticeable (only like a 1 mm difference between them) and his eyelid droopiness should become less apparent. It's not even noticeable all the time now. The bad news is, they need to rule out other causes of all this eye stuff. So the poor little guy has an MRI scheduled for next Friday. The thing I'm stressed about is that he has to go under sedation for the test....he's just too little to stay still for it otherwise. I'm quite worried about how his little body will react to anesthesia but am comforted that it will take place in the same hospital where he was born where they have a great children's center. He will be in good hands at least.

They will be looking for lesions or tumors on his sympathetic nervous system. Yikes! I don't like the sound of that at all. I told my husband that I'm not too worried about it being something like that, since it's seems such a textbook case of Horner's Syndrome. He replied with "yeah, but when has anything with us worked out in the classic textbook way.". Um...thanks honey for the vote of reassurance. But...he is right I guess. Still...I'm believing in the best. Mostly cause I just can't fathom the process of having to go through something so rough with the little guy.

We have a follow up appt with the opt doc on Wednesday where she'll put cocaine drops in his eyes. Yep...you read that right - cocaine. One friend of mine thinks it's pretty cool that Grayson will be able to tell his friends that his mom let him do cocaine before his 1st birthday. Ha! Another friend thinks him having 2 different eye colors will make him pretty cool with the ladies in his future. I agree. I kinda like that side effect. It will definitely make him stand out.

I guess after this appt there is a small chance we won't have to do the MRI which would be great. But I'm prepping myself emotionally for the MRI next week regardless...just in case.

Keep the little guy in your prayers and I will keep you updated.

7 comments:

Lori said...

I'll be praying for him! What a lot of tests for a little guy to have to go through! I hope everything turns out okay. That cocaine thing is crazy; never heard of that before!

Fertilized said...

Oh poor lil thing. I will say a prayer

Bee said...

Poor little guy. I'll say a prayer for him too.

Amber said...

I think the cool eyes paired with his Super Hero Arm Action can only mean good things! I'm praying hard for Mr. G! Love you...

Road Blocks and Roller Coasters said...

Poor little guy! I think having two different eye colors is pretty neat, actually, but I'll be praying for the best for him! ((HUGS))

JackiJaguar said...

Sending prayers your way...I hope everything turns out all right.

Elle Charlie said...

All things crossed for him. Sometimes husbands are too practical to be reassuring. You want them to say the right thing, but they say the thing that's most logical. At least mine does this all the time. When I try to screw up the courage to do lasik surgery I say, looking for reassurance, "but what if I go blind?" and he says, "that could happen, but it's not likely really." Um, thanks. You're supposed to say YOU WON'T! Duh.

I do think the cocaine experimentation prior to the first birthday will make for a good story :) And two slightly different colored eyes is cool. But of course I hope it's nothing at all more serious and he'll be in my prayers.