Thursday, September 25, 2008

Confirmed

Yesterday we had the follow-up with the ophthalmologist where she put the cocaine drops on his eyes. The test confirmed that it is Horner's Syndrome - which is caused by a disruption the flow of his sympathetic nervous system. This is either a/ caused by trauma to his neck, which could have happened during delivery or; b/ caused by a lesion or tumor that is blocking the nervous system pathway.

We are of course believing that it is "a", but we have to rule out the possibility of it being something more serious. So on Friday he has an MRI at 11 a.m. at the hospital where he was born. He has to go under anesthesia for it, since there is no way he will stay still enough without it. He also isn't allowed to eat for 6 hours before the procedure, so that's gonna be a fun morning. I really hate that he's going to be so upset and cranky and I won't be able to do a darn thing to fix it. I can just see his little eyes looking up at me saying "why aren't you feeding me mommy?".

Please pray for him and the test results (which we will find out by next Tuesday hopefully). Also pray for me and the husband as we are quite apprehensive and worried about Friday and having to put the little guy under.

I was thinking I wasn't too stressed about this, until yesterday I realized both my normal stress indicators were out in full force. The first thing I do when I'm stressed is grind my teeth together when I sleep. I know I do this because my jaw is super sore afterwards. So last night I wore my oh so sexy bite plate to try and prevent that a little bit.

The second sign of stressing is that I have this weird thing where I get really lightheaded and dizzy. I was having issues with this in the summer of 2007 after miscarriage #3 and was even on anti-anxiety meds for a bit. (Which by the way didn't help - they mellowed me out so much I got depressed....not really a better solution there). The last few days the light floaty feeling in my head has reappeared, and it is so not welcome. I just need to keep telling myself that it is in my control if I can just chill out a bit.

So I'm taking deep breaths and trusting that Grayson is in God's hands and everything is under control. I will be sure to update you all after tomorrow's testing.

3 comments:

Fertilized said...

debby, i am saying a prayer for your family

alison said...

Sending big prayers. Hope all goes well.

Katie said...

Debby. . .

Praying for your family. I am so sorry, I can't imagine how stressful this is.